InformedDNA provides expert genetics services to foundations and patient advocacy organizations. We’ve successfully addressed the challenge that many foundations face in supporting patients through the genetic testing and screening process necessary to identify appropriate candidates for clinical trials. We also help patient foundations to effectively leverage their outreach capabilities to engage pharmaceutical companies while continuing to focus on the needs of the patient community.
In this case study with Foundation Fighting Blindness, the world’s leading private funder of retinal disease research, we share how our genetics experts addressed some key challenges faced by the Foundation:
- Difficult to identify trial candidates
- Scarity of genetic testing data
- Limited access to genetic specialists
The program impacted care for greater than 30% of clinical trial participants.