InformedDNA is providing no-cost genetic testing and counseling to patients with Frontotemporal Dementia (also known as frontotemporal degeneration or FTD).

FTD is the most common form of dementia in people younger than 60 years old. Approximately 30% of all FTD is hereditary (i.e., runs in families) due to an inherited gene mutation (also known as a pathogenic variant. Genetic testing is an important step for patients with FTD to determine if their disease is the result of a gene mutation. Learning whether FTD is caused by a genetic mutation may enable clinicians to intervene sooner and evaluate your treatment options.

The three genes most commonly involved in hereditary FTD are progranulin (GRN), C9orf72 and MAPT. This testing program offered by InformedDNA includes these 3 genes, as well as 15 other genes associated with hereditary dementias.

Adults who have been diagnosed with FTD by a doctor (such as a neurologist) are eligible for genetic counseling and genetic testing at no cost through this program. Unaffected family members are eligible to participate in the program if they have a close relative (parent, sibling, adult child) with a GRN gene mutation.