The genetic counselors at InformedDNA working on this program are highly trained in hereditary neurological conditions. As part of this program, individuals will receive initial and post-test genetic counseling over the phone. Check out our easy-to-understand patient brochures (English version, Spanish version).

At the initial appointment, the genetic counselor will:

• Collect the individual’s medical history and a 3-4 generation family history
• Discuss the genetics of FTD
• Review the benefits and limitations of genetic testing

If the individual elects to proceed with genetic testing, then the genetic counselor will coordinate the test order and sample collection

• Results will be available in approximately three weeks from when the lab receives the sample

At the post-test appointment, the genetic counselor will:

• Review the individual’s genetic test result and implications for personal health and risks to family members
• Provide a written summary of the discussion and a copy of the genetic test result to the individual

Because our appointments occur over the phone, family members or friends may participate in the call, regardless of location.

This testing program is sponsored by Passage Bio. No personal identifying information of individuals participating in this genetic counseling and testing program will be shared with Passage Bio.